Xyan desperately needs your help

Xyan is a little boy from the Philippines who is very sick. He needs open heart surgery and his family are desperately trying to raise the money for this operation.

On 30th November there will be a fundraiser held at Thumb Plaza in Pudong, with live music, lunch and free flow beer and soft drinks. 250RMB for adults and 125RMB for kids.

If you can spread the word, attend, or make a donation, please do!

More information over at the website - battleforxyan.com

Below is an snippet from the site giving more information about Xyan and his illness.

"Family and friends of Xyan, are now uniting to help raise fund for Xyan’s open heart surgery. Your support and prayer will be very much appreciated.

Xyan的家人和朋友正齐心协力的为他的开胸手术筹集资金,我们真挚的感谢你们的帮助和祷告。

Xyan is a very sweet and a very smart boy. At his current age of 3, he can count 1-15, can name all the shapes, all the colors, can sing his ABCs, had memorized about 10 nursery songs. He likes to hug people and say it will be ok. He is really a great kid.

Xyan是一个非常聪明可爱的小男孩,今年3岁了。他能够从1数到15,能说出所有的形状和颜色,会唱字母歌,并记得10首儿歌。他喜欢抱着你说:不要担心,一切都会好的!他是一个非常棒的孩子!

He was born at 38 weeks, and was immediately diagnosed with Double Outlet Right Ventricle with Pulmonary Stenosis Infundibulovalvar, severe with normally related great arteries with aortic regurgitation, mild. He was retained another week at the hospital because of other complications. His recent 2D Echo assessment is Double Outlet Right Ventricle with Pulmonary Stenosis and Patent Ductus Arteriosus.

Xyan在我怀孕38周的时候出生,刚出生就被诊断出右心室双出口和肺动脉瓣狭窄,同时伴有大动脉转位。出生后因为其他并发症在医院待了一周。Xyan最近的2D超声心电图检查结果显示:Xyan患有右心室双出口,肺动脉瓣狭窄和开放性动脉导管等疾病。

Xyan, at a week’s old, was referred to the Heart Center, immediately after he was discharged from the local hospital. He was advised by his pediatric cardiologist to have a CT angio and cardiac cathetherization and an open heart surgery – correction of DORV under cardiopulmonary bypass on or before he turn 6 months; but due to lack of funds, his family had to delay, he was placed on maintainance medicine while waiting. The quote that was given by the Heart Center is an estimate of 111,500 RMB for the surgery alone, not yet including his recovery expenses.

当地方医院允许Xyan出院了后,Xyan立即被转入了心脏医学中心,当时他只有一个星期大。他的小儿心脏病专家建议Xyan在6个月大之前做心血管造影术,心脏导管插入术和体外循环心脏手术。但是因为缺少手术费,我们不得不将他的手术延后,Xyan等待期间一直靠药物来维持生命。心脏医学中心的手术费报价是111,500人民币,但这个费用仅仅是手术费,还不包括术后的恢复费用。

What is Double Outlet Right Ventricle?

什么是右心室双出口?

Double outlet right ventricle (DORV) is a congenital heart disease in which the aorta rises from the right ventricle (the chamber of the heart that pumps blood to the lungs), instead of from the left ventricle (the normal pumping chamber to the body).

DORV右心室双出口是一种先天性心脏病,DORV患者的主动脉的出口在右边,而非左边。正常心脏有左右两个心室,右边心室将血液输送到肺部,左边心室将血液输送到全身。

Both the pulmonary artery (which carries oxygen-poor blood to the lungs) and aorta (which carries oxygen-rich blood from the heart to the body) come from the same pumping chamber. No arteries arise from the left ventricle (the normal pumping chamber to the body).

而DORV患者的肺动脉和主动脉都来自同一个心室,负责输送血液到全身的左心室没有动脉出口。

Pulmonary valve is a heart valve disorder that involves the pulmonary valve. This valve separates the right ventricle (one of the chambers in the heart) and the pulmonary artery. The pulmonary artery carries oxygen-poor blood to the lungs.

右心室和肺动脉之间有心瓣膜,心瓣膜将右心室和肺动脉分开,肺动脉将血液输送到肺部。

Stenosis, or narrowing, occurs when the valve cannot open wide enough. As a result, less blood flows to the lungs.

如果心瓣膜开得不够大就会造成肺动脉狭窄,导致肺部血液供给不足。

Xyan has a hole and clog in his heart, apart from that, he has pulmonary stenosis, which causes him to have a hard time breathing. Because of Xyan’s condition, he is cyanotic ( turns Blue or purple tint to lips, skin and nails ), he has poor eating and poor weight gain, and has rapid breathing or shortness of breath. Everything excessive is not allowed because it might cause his heart to fail.

Xyan的心脏上有个洞,除此之外,他还有肺动脉瓣狭窄症状,这些导致他呼吸不顺畅。也因为这些病症,Xyan的嘴唇、皮肤和指甲都是青紫色,食欲很差,体重增长缓慢,呼吸急促且短。任何剧烈运动都可能导致心脏衰竭。

Let us help this little boy extend his life and see how wonderful life is! He had waited for this operation since he was 6 months old. Let’s give him a chance."

Xyan六个月大时就开始了等待,请给他一个机会!让我们伸出援助之手,托起这个孩子的生命,让他可以看看这个精彩的世界!

“It’s not how much we give, but how much love we put in giving” Mother Teresa